February 2015 Agenda

Stanford Adult Cystic Fibrosis Patient Advisory Council

Date/Time: Wednesday, February 18, 5:00pm-6:20pm
Location: Blake Wilbur  Room W1084& Join WebEx

WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer.

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines.  Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.

Agenda

1. Introduction (5:00 – 5:10)
2. Adopt January minutes (5:10)Please review Angel’s minutes on the blog or via her email previously sent to you
3. PFCC status update (5:10 – 5:40) Joan Scott
4. CF PFAC Project Update – (5:40 – 6:10)
1. New Project Proposals
1. “CF Encounters”
2.  Issue Management Protocol

2. Virtual Meeting Proposal/Online CollaborationCoordination with CFF and external clinic development – Shawn

3. Clinic-Patient Opportunities – Monica/Angel/Elika
   Status (Baseline Determination, NP Questionnaire Update, General Questions)

4. Council Website
   Input for potential improvements

5. Patient Questionnaire
   Status

5. Action Items from Previous Meeting (6:10 – 6:20)
1. Brian: If you are able to get into contact with the MyHealth Team pass along the email issues Jennifer is having. Also check to see if there is a way Jennifer can use MyHealth to send patients forms like a patient’s assistance program.
2. Brian: Work with Colleen on creating a profile for the Facebook page.
3. Angel: Inform Colleen of how many CF patients will be in the room during the CF Education Day conference so she can supply masks and hand gel.
4. Colleen: Email Brian or Angel  Dr. Milla's Vest Cycling Procedure - Complete
5. Devin: Follow up with Elika about insert in March's Newsletter regarding Baseline Determination, and post on the Facebook Page.
6. Reminders
1. Publicize Council and council activities
2. CF Education Day on March 7
7. Final Comments/Discussion/Reminders (6:20 – ??)

Adjournment - Next meeting March 18, 2015

Administrator invites you to this meeting on behalf of Tom Metz “CF Adult Advisory Council Meeting” from 5-7p 2/18/15 Wed, Feb 18, 5:00 PM | 2 hr (UTC-08:00) Pacific Time (US & Canada) This invite is for the “CF Adult Advisory Council Meeting” from 5-7p 2/18/15 Meeting • Telepresence attendees please press the join button on your touch screen to connect. • WebEx attendees please click the green “Join Using WebEx’ tab within this invite. • Next join the WebEx audio bridge by phone. Do not use computer audio. • WebEx attendees to enable your laptop camera click the camera icon next to your name in the meeting participants list. Questions call: Tom Metz Unified Communications 650 492 3675 Join Using WebEx Meeting password: a1830 Meeting number: 805598492 Join Using Telepresence Video address: 7527500@stanfordmed.org Locations: TP-900 Blake Wilbur-Tumor Board W1084 Audio Connection Call-in numbers Toll: 1-650-479-3208 Toll-free: 1-877-668-4493 Access code: 805598492 Global call-in numbers Toll-free calling restrictions

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