Stanford Adult Cystic Fibrosis Patient Advisory Council
Date/Time: Tuesday, December 15, 5:00pm-6:20pm
WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form. It is recommended you call in for audio as opposed to using your computer.
Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition.
Please have this copy of the agenda and attachments with you during the meeting.
Agenda
1. Introduction (5:00 – 5:10)
2. Adopt November minutes (5:10)
Please review Angel’s minutes on the blog or via her email previously sent to you
3. Project Update (5:10 – 5:50)
a. Virtual Meeting Proposal/Online Collaboration – Erick/Brian
Action Items : Colleen to provide Erick with the name of our contract in IT; Erick to contact IT for a status updates
Action Items : Colleen to provide Erick with the name of our contract in IT; Erick to contact IT for a status updates
b. CF Encounters – Lauren/Devin
Action Items : Joan to provide input on how to disseminate information to the units (Ex: RT, in-patient unit, infusion, etc.)
Action Items : Joan to provide input on how to disseminate information to the units (Ex: RT, in-patient unit, infusion, etc.)
c. Informational Sheet on Masks – Devin
Action Items : Devin to check with the clinic on their recommendations for which mask(s) should be used
Action Items : Devin to check with the clinic on their recommendations for which mask(s) should be used
d. Issue Management Decision Tree – Angel/Monica/Jay/Elika
Action Items : Angel to contact Meg to confirm that she will distribute this form; Colleento contact Joan with regards to budget to print our new project documents on nice heavy weight paper
Action Items : Angel to contact Meg to confirm that she will distribute this form; Colleento contact Joan with regards to budget to print our new project documents on nice heavy weight paper
e. Coordination with CFF and external clinic development – Shawn
f. RPQ/MyHealth update – Jay
Action Items : Jay to contact My Health folks to see if they can get our RPQ form in a PDF format uploaded into the MyHealth site.
Action Items : Jay to contact My Health folks to see if they can get our RPQ form in a PDF format uploaded into the MyHealth site.
g. Clinic-Patient Opportunities – Angel/Monica/Elika
Action Items : Angel to check with the clinic to determine which meds aren’t available during a hospitalization and what the process should be for patients when using their own medication from home.
Action Items : Angel to check with the clinic to determine which meds aren’t available during a hospitalization and what the process should be for patients when using their own medication from home.
4. Action Items (5:50 – 6:00)
a. Joan – update on file storage recommendation
b. Angel – Status Report on parking perks pilot results
c. Jay – Evaluate and report on new options for pins or badges for members to wear during Stanford visits for council promotion.
5. Reminders
a. Publicize council and council activities
b. Continue to complete volunteer requirements
c. Future Projects
CF Patient Medical Compendium
CF Patient Medical Compendium
6. Final Comments/Discussion (6:00 – 6:10)
Next meeting January 19, 2015
Next meeting January 19, 2015
7. Closed Session (6:10 – 6:30)
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